It has come to our attention that researchers are increasingly uploading software tools and analysis scripts - which is an acceptable practice and required by some journals - to web-based repositories (such as GitHub).
As such scripts may have been run on underlying UK Biobank data, we would draw attention to the need for considerable caution to ensure that no UK Biobank data are uploaded to these websites (either as a result of being incorporated within the analysis code, or otherwise being referenced in a manner that leads to its inclusion).
Making any participant-level UK Biobank data available on a web-based repository is not acceptable. As such, UK Biobank would re-iterate that all researchers exercise appropriate oversight, care and control to ensure that such uploads of data do not occur.
UK Biobank considers that the great majority of researchers are aware of UK Biobank’s requirements with regard to processing and storing of its data, and reminds all researchers that UK Biobank participant data must always be treated in a manner consistent with the provisions of the Access Procedures and the MTA (and the data security provisions of the MTA) and specifically:
- may not be shared (directly or indirectly) with other third parties (outside of an approved application).
- may not be uploaded (directly or indirectly) to web-based or other repositories accessible by third
parties.
Aside from any legal consequences, any default in complying with these obligations may lead to applications and registrations being terminated.
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